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| Guest Editorial by Doug Ulman |
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This is part two in a series from guest editorialist Doug Ulman, founder of The Ulman Fund for Young Adults.
Issues Facing Young Adults with Cancer are Enormous. More than 70,000 young adults are diagnosed with cancer every year. A cancer diagnosis between the ages of 15 and 40 years is nearly 8 times more common than such a diagnosis during the first 15 years of life. The strides made in cancer treatment have generally bypassed young adults. Cancer is the leading disease killer among 20 to 39-year olds. While both younger and older patients are seeing improvements in survival rates, the rates for young adults have improved far less, and the gap is worsening. Due to a lack of progress in survival improvement since 1975, young adults diagnosed with cancer today have a worse prognosis than those diagnosed 25 years ago. Why? While it is impossible to pinpoint one reason for this survival disparity there are several clinical and social factors which contribute to this lack of progress:
The Lance Armstrong Foundation and the Ulman Cancer Fund for Young Adults are two organizations that are taking necessary steps to address the devastating and unequal burden of cancer that is experienced by young adults. LAF Through the work of the LIVESTRONG (TM) Young Adult Alliance, the Lance Armstrong Foundation is leading a coordinated national effort to address those factors that contribute to the unequal burden of cancer experienced by young adults. What is the LIVESTRONG Young Adult Alliance?
The following three areas are considered to be of the highest priority for action as the Alliance moves forward:
The Ulman Cancer Fund for Young Adults provides programs and services which address areas of cancer support, advocacy, and education specific to young adults dealing with cancer. The UCF coordinates the first and only support service of its kind, their Comprehensive Support Program for Young Adults Affected by Cancer (CSP). CSP offers a support network that addresses the unique needs of this population, including:
Additionally, UCF provides community grants to grassroots organizations that focus on bridging the gap in psychosocial services available for adolescents and young adults. Their Visionary Grants program looks for both traditional and novel approaches to support this underrepresented population. ________________________________ References: * The Adolescent and Young Adult Oncology Statistics Summary * 2006 SEER report is based on data collected between 1975 and 2001. |